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Informational Links

Here you will find links and information to Clinical Studies and Trials, Co-Pay Assistance, and other helpful resources.

Company Co-Pay Assistance

Kineret

 

Patient Financial Support:

  • Kineret Copay Assistance Program

  • Kineret Patient Assistance Program

  • Kineret QuickStart Program

  • Kineret Bridge Program 

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Arcalyst

 

Financial Assistance Programs:

  • Commercial Copay Assistance

  • Quick Start Program

  • Patient Assistance Program

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Ilaris

(Parent Company: Novartis)

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Patient Financial Support:

  • Ilaris Co-Pay Savings Offer

  • Ilaris Free Trial Offer

  • Novartis Patient Support

  • Novartis Patient Assistance Foundation

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Other Patient Resources

National Organization for Rare Diseases (NORD) 

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RareCare® Patient Assistance Programs

They provide patient assistance programs to help individuals living with rare disease: 

  • Obtain Medication

  • Receive financial help with insurance premiums and co-pays

  • Get diagnostic testing assistance 

  • Provide caregiver respite

  • Offer support during emergencies

  • Gain knowledge about rare diseases

  • Connect with other patient assistance programs

NORD's State Resource Center

Here you can search different resources by state that contained information on organizations that offer free or low-cost programs and services! 

Clinical Trials

Updated: 12/3/2025

Mayo Clinic

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Yao Syndrome for Clinical Translational Research

Status: Open

Principal Investigator: Dr. John Davis MD

Link: https://www.mayo.edu/research/clinical-trials/cls-20586030

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Gastrointestinal Manifestations in Yao Syndrome

Status: Open

Principal Investigator: Dr. Vandana Nehra MD

Link: https://www.mayo.edu/research/clinical-trials/cls-20577204

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NIH - National Institutes of Health

 

Studies of Immune Regulation in Patients with Common Variable Immunodeficiency and Related Inborn Errors of Immunity (IEI)

Status: Open

Principal Investigator: Dr. Warren Strober MD

Link: https://clinicalstudies.info.nih.gov/​

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Frontiers - Research Topic

Updated: 12/3/25

Basic, clinical, and translational studies of Yao syndrome and other NOD2 related diseases

They welcome the submission of Case Reports (Case Series are preferential), Brief Research Reports, Original Research, and Review Articles on the following sub-topics:

  • Mechanistic studies of YAOS at the immune and molecular levels

  • Human and animal study results on interactions between NOD2 and other NOD-like receptors

  • NOD2-associated diseases: clinical, immune and molecular mechanisms, and therapeutic advances

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